As you could follow on my Instagram, I recently had my 6 monthly post tumor check. I got some good news and some unexpected news too. Let me walk you through.
So last Wednesday, march 8th 2017, I had an appointment at the UZ Leuven hospital for both an MRI scan and meeting with one of the hospitals neurosurgeons.
First things first: I was almost too late at the hospital. This never happened to me before in those two and a half years. I miscalculated our departure time at home and since 6-7 am is kinda the rush hours we got stuck in traffic. Yes I’m one of those too stress related emotional criers so I cried about not making my appointment. But then, thank God, we arrived at the hospital at 6:56 am. Did I mention I had to be enrolled at 7 am for my MRI scan? First I had to enroll myself at the self enrollment machine in the main hall (very nerve racking if you only have 4 minutes). Than I had to run through halls, taking elevators, arriving at 7 am sharp to enroll myself for that MRI. I could cry from happiness!!! Sorry Tessa for running so quickly though ???
Anyway, that MRI passed quite ok. They managed to insert my infusion in 1 take which is extraordinary. The machine makes a lot of noise so 20 Minutes almost feels like an hour.
At 10 am I had my appointment with the neurosurgeon. So it’s here where I got good and unexpected news. Before my surgery, the neurosurgeons told me that my main artery was running through the tumor so it was very difficult and complication could occur. Afterwards they told me they had removed the entire thing and so they said for the past two and a half years, until march 8th. Yep, you read that right. While reviewing the latest scan and comparing it with the last one he said that it still looked the same as the last time. But then, then he said: here you can see the tumor residue, right here at your main artery. So it stayed the same as last time. I was like: wait what the f*** did you just tell me? I was in shock. They DIDN’T remove the whole thing. It was too dangerous! Like why would they say different for the last 2,5 years?? I’m still very confused but since the results where good, my six monthly check will now become a yearly check. It feels weird to know I still have a small tumor inside my head. I really don’t know whether to cry or to laugh from stress. I still need to find a way to give this newbie a place in my mind and get in peace with it.
So quick round up: I’m not completely tumor free but at this moment there’s no health risk. It didn’t increase so that’s good news. Let’s hope my next update will be positive. Countdown to march 7th 2018. For now: tumor free for 2,5 years ??❤
Thank you for reading my tumor stories. Writing about it helps me mentally and makes me coop with my negative feelings.
Lot’s of love,